98896 http://www.orpha.net/consor/cgi-bin/OC_Exp.php?lng=en&Expert=98896 Duchenne muscular dystrophy Article for general public Treat-NMD http://www.treat-nmd.eu/downloads/file/standardsofcare/dmd/norwegian/DMD_FG2010_NO.pdf Article for general public Treat-NMD http://www.treat-nmd.eu/downloads/file/standardsofcare/dmd/finnish/DMD_FG2010_FI.pdf Clinical practice guidelines PNDS http://www.has-sante.fr/jcms/p_3121365/fr/dystrophie-musculaire-de-duchenne Guidance for genetic testing ANPGM https://anpgm.fr/media/documents/anpgm_022-v2-myopathie_de_duchenne_et_becker.pdf Clinical practice guidelines PNDS http://www.has-sante.fr/jcms/p_3112119/fr/fragilites-osseuses-secondaires-de-l-enfant Emergency guidelines Orphanet Urgences http://www.orpha.net/data/patho/Emg/Int/fr/DystrophieMusculaireDuchenne_FR_fr_EMG_ORPHA98896.pdf Article for general public Treat-NMD https://treat-nmd.org/wp-content/uploads/2019/11/uncategorized-MDA-DMD-family-guide_fr-final-fichier-compress%C3%A9.pdf Article for general public Treat-NMD http://www.treat-nmd.eu/downloads/file/standardsofcare/dmd/hebrew/DMD_Heb_Family_friendly_Guide_Brochure.pdf Article for general public Treat-NMD http://www.treat-nmd.eu/downloads/file/standardsofcare/dmd/polish/DMD_FG2010_PLprint.pdf Emergency guidelines Orphanet Urgences https://www.orpha.net/data/patho/PL/EmergencyGuidelines_DystrofiaMiesniowaDuchennePLPro13913.pdf Article for general public Treat-NMD http://www.treat-nmd.eu/downloads/file/standardsofcare/dmd/vietnamese/DMD_booklet_Vietnamese.pdf Article for general public Treat-NMD http://www.treat-nmd.eu/downloads/file/standardsofcare/dmd/latvian/DMD_FG2010_LVprint.pdf Article for general public Treat-NMD http://www.treat-nmd.eu/downloads/file/standardsofcare/dmd/lithuanian/DMD_FG2010_LTver2Print.pdf Anesthesia guidelines Orphananesthesia https://www.orphananesthesia.eu/en/rare-diseases/published-guidelines/duchenne-muscular-dystrophy.html Article for general public Treat-NMD https://treat-nmd.org/wp-content/uploads/2019/11/uncategorized-Duchenne_Ratgeber.pdf Emergency guidelines Orphanet Urgences https://www.orpha.net/data/patho/Emg/de/Emergency_Duchenne-Muskeldystrophie-dePro13913.pdf Article for general public Treat-NMD https://treat-nmd.org/wp-content/uploads/2016/09/Ukrainian-DMD-Guide_UKR.pdf Article for general public Treat-NMD http://www.treat-nmd.eu/downloads/file/standardsofcare/dmd/farsi/DMD_FG2010_FA.pdf Article for general public Treat-NMD http://www.treat-nmd.eu/downloads/file/standardsofcare/dmd/greek/DMD_FG2012_EL_PRINT.pdf Clinical practice guidelines Neurologia (Engl Ed) https://www.elsevier.es/es-revista-neurologia-english-edition--495-articulo-consensus-on-diagnosis-treatment-follow-up-S2173580818300476 Clinical practice guidelines Eur J Paediatr Neurol https://pubmed.ncbi.nlm.nih.gov/39892019/ Clinical practice guidelines Arch Pediatr https://pubmed.ncbi.nlm.nih.gov/39332946/ Emergency guidelines Orphanet Urgences https://www.orpha.net/data/patho/Pro/en/Emergency_DuchenneMuscularDystrophy-enPro13913.pdf Clinical practice guidelines Disabil Rehabil https://pubmed.ncbi.nlm.nih.gov/34165385/ Guidance for genetic testing Eur J Hum Genet https://www.nature.com/articles/s41431-017-0013-2.pdf Article for general public Treat-NMD https://treat-nmd.org/downloads/file/standardsofcare/dmd/uk_english/UK2018FamilyDMDGuide.pdf Anesthesia guidelines Orphananesthesia https://www.orphananesthesia.eu/en/rare-diseases/published-guidelines/duchenne-muscular-dystrophy.html Clinical practice guidelines Lancet Neurol https://pubmed.ncbi.nlm.nih.gov/29395989/ Review article Arch Dis Child https://pubmed.ncbi.nlm.nih.gov/26153505/ Clinical genetics review GeneReviews http://www.ncbi.nlm.nih.gov/books/n/gene/dbmd/ Patient-Centered Outcome Measures (PCOMs) PROQOLID^TM https://eprovide.mapi-trust.org/advanced-search?database=proqolid&therapeuticIndications%5B%5D=Muscular Dystrophy, Duchenne Clinical genetics review GeneReviews https://www.ncbi.nlm.nih.gov/books/NBK1309/ Anesthesia guidelines Orphananesthesia https://www.orphananesthesia.eu/en/rare-diseases/published-guidelines/duchenne-muscular-dystrophy.html Clinical practice guidelines Neurología https://www.elsevier.es/es-revista-neurologia-295-articulo-consenso-el-diagnostico-tratamiento-seguimiento-S021348531830015X Emergency guidelines Orphanet Urgences http://www.orpha.net/data/patho/Emg/Int/es/DistrofiaMuscularDuchenne_ES_es_EMG_ORPHA98896.pdf Article for general public Treat-NMD https://tinyurl.com/y3vyuz7e Article for general public Treat-NMD http://www.treat-nmd.eu/downloads/file/standardsofcare/dmd/dutch/DMDFG2010_NLPrint.pdf Article for general public Treat-NMD http://www.treat-nmd.eu/downloads/file/standardsofcare/dmd/turkish/dmdmdffg_turkish.pdf Article for general public Socialstyrelsen https://www.socialstyrelsen.se/kunskapsstod-och-regler/omraden/sallsynta-halsotillstand/om-kunskapsdatabasen/sok-bland-sallsynta-halsotillstand/duchennes-muskeldystrofi/ Article for general public Treat-NMD http://www.treat-nmd.eu/downloads/file/standardsofcare/dmd/bulgarian/DMD_BG_FamilyGuide2.pdf Article for general public Treat-NMD http://www.treat-nmd.eu/downloads/file/standardsofcare/dmd/slovenian/DMD_FG2010_SL_v2.pdf Article for general public Treat-NMD http://www.treat-nmd.eu/downloads/file/standardsofcare/dmd/slovak/DMD_FG2010_SK.pdf Article for general public Treat-NMD http://www.treat-nmd.eu/downloads/file/standardsofcare/dmd/danish/DMD_dk_booklet.pdf Article for general public Treat-NMD http://www.treat-nmd.eu/downloads/file/standardsofcare/dmd/kyrgyz/DMD_FG2010_KY.pdf Article for general public Treat-NMD http://www.treat-nmd.eu/downloads/file/standardsofcare/dmd/serbian/DMDSerbian.pdf Anesthesia guidelines Orphananesthesia https://www.orphananesthesia.eu/en/rare-diseases/published-guidelines/duchenne-muscular-dystrophy.html Article for general public Treat-NMD https://treat-nmd.org/wp-content/uploads/2016/09/Czech-CZ_FamilyDMDGuide_2018.pdf Article for general public Treat-NMD https://treat-nmd.org/wp-content/uploads/2016/09/Russian-RUS_FamilyDMDGuide_2018.pdf Article for general public Treat-NMD http://www.treat-nmd.eu/downloads/file/standardsofcare/dmd/chinese/DMD_FG2010_ZH-CN.pdf Article for general public Treat-NMD http://www.treat-nmd.eu/downloads/file/standardsofcare/dmd/romanian/dmdmdffg_ro.pdf Article for general public Treat-NMD http://www.treat-nmd.eu/downloads/file/standardsofcare/dmd/hungarian/DMD_family_guide_brochure_magyar.pdf Emergency guidelines Orphanet Urgences http://www.orpha.net/data/patho/Pro/it/UrgenzaDuchenne.pdf Article for general public Treat-NMD http://www.treat-nmd.eu/downloads/file/guidafamiglie-parentprojectonlus.pdf Article for general public Treat-NMD https://treat-nmd.org/wp-content/uploads/2020/06/uncategorized-1-Guia-Familiar-DMD-Portugu%C3%AAs.pdf Article for general public Treat-NMD http://www.treat-nmd.eu/downloads/file/standardsofcare/dmd/japan/DMDweb03_02pass.pdf